Repost: The Day I Almost Lost My Daughter – Part II

Part II  – Continued from yesterday’s post

Fortunately, I am extremely level-headed and “all business” in crisis situations.  That was the one and only thing I had going for me at that point. My husband continued to help the EMT complete the form and I called my mom to get a detailed account of the events that happened that day because I knew if we couldn’t provide that information to the professionals they would be shooting in the dark.

As I was waiting for her to answer the ringing phone, I saw the medical team putting oxygen up to my daughters face. I also heard the head nurse say, “Her breathing is lapsing.”

I stepped off to the side to give room to the six or so people all trying to do their part of the job.  I kept one eye on the table.  She wasn’t moving. My mom answered.  According to her, the events of the day went something like this:

8:00 AM – Kids woke up and ate a normal breakfast

11:30 AM – Lunch followed by a nap

3:30 PM – My daughter said she felt sleepy and volunteered to go up to her bed (this was   NOT normal but grandma assumed she was coming down with the flu.)

4:00 PM – My daughter vomited in bed. (Grandma discovered it when she checked in on her.)

4:15/30 PM – My husband came home and gave her a bath.  (She only answered “yes/no” questions.)

5:00/30 PM – My daughter stops speaking and stares up at ceiling.

I started to think.  Had anything else happened to us recently that could bring on a severe illness or reaction? Could a flu shot be the cause?  Our daughter had just had one the day before, but she’d never reacted to vaccines in the past. I told them everything my husband and I knew and then the ambulance arrived. I am not sure how much time had passed at that point. It felt like an hour due to all that had gone on it such a short period of time but I assume it was only 10 minutes.

I strided quickly along side the gurney as the men pushed her bed outside and toward the back of the ambulance.  Once she was loaded in, I got in the front seat.  My husband got in his car to follow us. The drive to the main hospital downtown should’ve taken us 20-25 minutes.  I called my mom back to give her the update.  When, my mom heard what had taken place I think the severity of the situation finally set in. I had time to text a friend of mine and let her know we were having an emergency.  I don’t know why now that I did that but I think I just wanted as many people to know as I could think of and to ask them all to pray. Whatever your belief system, my thought was if there was a higher power and if the power of unified prayer really worked, I sure as heck needed it right then.

No sooner than I had drafted the message, I was interrupted by the driver telling me they couldn’t stabilize her all the way to the downtown children’s hospital and we were making a detour to the nearest adult hospital. WHAT?!!!!!

I hit send on my text.  Then, it was officially scary. At that moment, I prayed to God  that if he had to take someone, please take me and not her. I would’ve been alright with that.  I’d had a good 34 years on this Earth. I remember hard trying to hold myself together at that point.

The sirens were so loud.  My daughter is very sensitive to noises and I could only think of how scared she must be.

We pulled up quickly but there was an emergency team awaiting us at the door. I thought My daughter was quickly wheeled into another room and I was asked more questions to complete more forms. At one point, a man told me they were going to try to give her an anti-seizure med but I don’t remember the name. Pretty soon, I was being told that I couldn’t stay with her because she had to be intubated.  (I guess that’s not something good for a parent to see.)

We sat in a waiting room for about an hour or two.  Time was slipping away by that point.  I was drinking bad coffee and repeating the day’s time table then by heart. My husband and I kept reviewing the timeline that day to make sure we hadn’t missed something. Finally, we got word that we could get back into another ambulance and proceed with her stabilized to downtown. My husband and I were taken back to her room and handed a plastic bag of her personal effects. In it was her Dora the Explorer pajama top, which had been scissor cut down the front when they had to work on her, socks, and a hair bow.  That made me sad and my stomach queezy—not the intubation.  It was as if she was already gone. I kissed her on the cheek but she didn’t move.  The machines were helping her breath.

Round two in the ambulance was not as rushed but somehow more stressful.  After two stops, our daughter was no better off than she was when we brought her in.  No one knew for certain yet what was wrong or why this had happened.  I called my mom again and asked her to call our Pastor.  It was then that I began to prepare myself that our daughter may not live.  And, if she did live, she may already be a vegetable.  It was a horrible, sickening feeling.  I was 80/20 on bad news versus good.

After a 30-minute drive, we pulled up at the children’s hospital. Again, there was a team waiting. Again, I got out and answered more questions and filled out more forms.  My husband arrived shortly after but couldn’t find us because we went straight to the emergency room.

I was asked if she could’ve gotten into something in the cabinet that was poisonous.  I didn’t think so.

I was asked if she started to show signs of paralysis setting in from the feet gradually up the body. No.

I was asked if she was allergic to latex. I didn’t think so.

I was asked if she’d ever had an MRI or CT Scan before. No.

I was asked if she could’ve been exposed to any unusual bacteria.  Well, she goes to daycare.

The physicians drew blood, monitored her breathing, watched the heart monitor and my husband and I faded off into the background.  I thought I saw her eyes twitch. I was just relieved they let us stay and tried to stay out of their way as much as possible in hopes of showing that I wasn’t the type of mom to freak out or be overbearing.  All business.

She seemed to be fluttering her eyes a bit and although her eyes were closed, an arm tried to raise up purposefully and appeared to be reaching to pull out the tube in her mouth and nose. I prayed my baby was still in there THINKING of how to get out of the straps she had holding her limbs down.

The nurse put something in her I.V. (I assume another dose of sedative) and they continued working.

To be continued tomorrow for the final of three posts.

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Repost: The Day I Almost Lost My Daughter – Part I

This time of year marks the anniversary of a very difficult and emotional event.  I repost this blog in honor of my daughter, now age 5 years.

 (Due to the length of this post, it will be a three-part series. I preface this by saying in no way shape or form is this going to be humorous.  But, this really did happen.)

This week will mark the anniversary of a very scary and intense day in our family’s life. October 23, 2009 was the day I almost lost my daughter.  I don’t mean “lost” as in she wandered off in a store.  I mean “lost” as in we called the pastor in the event our baby had to be read last rites. The events of that day are still surreal.  But, I can speak about them now in such a calm, rationale way that it is almost detached.  Reiterating your story to thirty-or so doctors and nurses will do that to you, I suppose.

This time last year, nothing interesting or out of the ordinary was happening.  I was working the same job that I had been for three years.  My husband was too. It was a crisp but sunny autumn Friday. My mom was home watching our son and daughter as she normally did on Fridays. I only thing really on my mind then was that our son’s baptism was scheduled for that Sunday, October 25, and therefore I had to get out at some point in the next two days to buy his soon-to-be Godparents a thank you gift.

The day progressed normally. My husband called me around 4:30 p.m. to tell me he was off work and headed home. That sounded great to me because I figured we could do steaks on the grill, have some red wine and enjoy and early night. When five-o-clock hit, I figured I’d better scoot to the store to buy that gift for the Baptism. The drive home took me past the mall and several shops so a quick stop wouldn’t have been any big deal—normally. As I was pulling into the store parking lot, I got a call from my husband.  It was about at about 5:15 p.m. He told me that our daughter didn’t look well and was possibly getting the flu. He told me I should come home. I told him I would but didn’t mention that it would be after I purchased that gift I was hunting.

My mom was there.  My husband was there.  What could I do for her that they couldn’t?

About fifteen minutes later, I got another call. I was standing in a looooong line waiting to check out. This time, he sounded more serious but yet I wasn’t particularly worried.

Our conversation went something like this:

Husband: “Something is wrong with her.  She’s not answering me when I talk to her. I just gave her a bath because she threw up.  Her eyes won’t focus and she’s limp.”

Me: “What do you mean her eyes won’t focus?  Like, they’re glassy? Does she have a fever?”

Husband: “She just keeps staring at the ceiling now. Even Grandma is worried.”

(This last statement is what finally got me to understand that we must’ve had a serious situation on our hands because my mom does not believe in going to the doctor.  You have to be on death’s door before she thinks seeking medical help is absolutely necessary. In this case, it was.)

Me: “It’ll take me another 15 minutes to drive home.”

Husband: “ Just meet me at the Urgent Care.”

Me: “You think it’s that bad?”

Husband: “Yes, I gotta go.”

Click.

The place he was talking about was a satellite branch of our city’s main Children’s Hospital which is brand new and only about a five-minute drive from our home.  I was ten minutes from there.

Once I’d left the store, hopped in the car and driven to Urgent Care I was pulling in at the same time as my husband.

I turned into the first parking space I saw and threw it in park. I hurried over to my husband’s car and he was already unstrapping the car seat from her shoulders.  When I saw her face I was taken aback. There was a child that look like my daughter. But she was as limp as a rag doll, head cocked to the left side, her eyes were almost fully rolled up in her head (but off to one side) and her mouth was gaped open. I thought she was brain dead.

Scooping her up in my arms, I hustled all 21 pounds of her into the facility with my husband following behind.  At check-in, a woman in nurses’ scrubs looked at me and asked what was wrong with my daughter. I said (and I quote), “I don’t know but LOOK at her!!!”

That nurse turned over her shoulder and yelled, “Call 911!” Three others standing nearby came from behind the registration desk and escorted us quickly to a side room and instructed me to lay my daughter on the gurney.

Panic hit me at that point.  First, because we thought we were coming to a branch of Children’s Medical where our daughter could be helped. But, when “Call 911!” was uttered, it was clear they could not. Second, because as my child lay non-responsive on the table.  A nurse, EMT and some other person all started talking—to each other—to me—to her— all at the same time. Then, the EMT started running through some questions on a form attached to a clip board that were directed at me to answer.  Although, I had only entered the situation seven minutes ago. So, I was as clueless as he was.

He explained to my husband that this branch is mainly for minor Urgent Care issues, like flu or stitches. They weren’t staffed to treat a case like this. An emergency transport team was on its way to take us downtown to the main children’s hospital.

“Which one of you want to ride in the ambulance?” he said.

To be continued…

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Why Do You Lace Up?

Someone recently asked me, “Why do you lace up?”

About four months ago, I began running. I have always been active, but running was not my sport of choice.  In fact, I sort of hated it. I hated how winded I got, how cramped I felt and how bad I was at it. But, without pain, there’s no gain – and I had gained only baby weight up to that point.  A pending divorce, lots of stress and a body I didn’t like inspired me to get off my butt and do something. I wanted to be a HOT mom, not a hot mess. So… I laced up.

Bee Pink Shubeez

I learned how to run properly too so that I didn’t get as tired or feel cramped. I bought new workout gear that inspired me.  Part of that ensemble is now a cute little shoe tag that I wear.  It reads one word: “Inspire.”

Shubeez is the company that makes these nifty little shoe statements. They have a variety of styles. Since October is Breast Cancer Awareness Month, this photo shows a “Bee Pink” Shubeez.

Shubeez are little shoe tags doing big things. Best of all, they have a local connection, as Shubeez was founded by Dayton native and fitness professional Todd Schulze. He wanted a way to honor people he loved, and something besides a T-shirt or Medal he could wear on his shoes for the races he’s completed. In his kitchen in Dublin, Ohio, Shubeez was born!

So “what’s with the name?” His Pee-Wee Football coach Phil Estes whom they called “shubee” was larger than life and inspired Todd every day. He died of cancer at a fairly young age, so it was a no brainer for Todd. Shubeez encourages people to “Lace Up. Get Moving. Give Back.”

CureSearch Walk and the Shubeez bracelet

Recently, I did the CureSearch walk in honor of a friend’s daughter who is battling cancer. I gave her a Shubeez bracelet to remind her what a role model and hero she is for so many kids.

After running for two months, I decided that I am going to not only get myself in shape but do it for a good cause. I signed up for the Free to Breathe run / walk for lung cancer research November 3, 2012 in Dayton, OH and created a Biz e-Mom Team for parents (and non-parents) just like me who wanted to get out there and do something along side of me.

Fitness is a great way to help yourself and make a statement. Moms sometimes forget to do things for themselves. I know all too well.

I am proud to say that I ran my first 5K ever yesterday and placed 3rd in my age group, 11th for females and 46th overall out of 186 runners. It was a great accomplishment. I look forward to the next one with my team.

I finished my first 5K with my Inspire Shubeez making a statement!

 

So before the winter months hit – get out there and think about ”Why do you Lace-Up?”

P.S. It’s not too late to join the Biz e-Mom Team or donate. Click here

For more info on Shubeez go to: http://www.shubeez.com/ or LIKE them on Facebook

 

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Five Pounds to Five Years

Five years ago today, I became a mom. I went to my OB for a regularly scheduled NST and before the day was over had been instructed to pack my bags because my labor was going to be induced.

Things didn’t go as planned to say the least. An emergency c-section produced a small, yet healthy, 5 lb. 13 oz. baby girl. In that moment, the only thing that mattered was her.

Biz e-Baby1 Newborn Photo

Today, the only thing that matters is still her. Except she also now has two younger brothers to share the spotlight with. I love all my Biz e-Babies dearly.  However, September, 28 will always be a day reserved for my first-born.

Should she ever read this, I want to remind her about the day she turned five years old. I want her to remember how she insisted on only wearing a skirt and that anything else on her body had to be sparkly including her “Twinkle Toes” shirt and pink princess shoes. She demanded to wear tights, instead of socks.  “Sock are ugly,” she told me this morning.  And, she and her younger brother fought over the magic wand and crown I gave her this morning as a birthday present on the way to school. Despite all that, her teacher emailed me a picture this afternoon to reassure me her special day was going just fine.

Biz e-Baby1 – age 5

Happy birthday darling. You are even more beautiful than the day I first laid eyes on you.

 

Love,

Mommy

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Detour

>Detour (Pounding The Drums or Pounding The Pa...

Detour ((Photo credit: Wikipedia)

If you would have told me a year ago that I would be a single mother of three, I wouldn’t have believed you. Life is full of unexpected twists and turns. We cannot control those along the way, but we can choose to slow down at the curves and navigate the best we can. I never pull off the road completely. I can’t.  I have three children who depend on me.

As any single mother will tell you, thinking too much can drag you down. “Maybe I deserve what I have. Maybe I am lucky. Can I support my family?  Can I do all of this alone?”

Venturing into the deep unknown can be a very frightening experience. Because, well truly, no one has ever gone where you are about to go. No two divorces are alike. No one else has or will ever walk in your shoes.

People – friends, family, colleagues, – try to offer advice or support. Bless them, they try. But, they really have no clue. Only you can decide how you will proceed down the road of life. There may be some accidents along the way but no matter how long the journey, I look straight ahead and keep my eyes on the road and my hands tight on the wheel.

Fifty two weeks ago, my life was totally different.  No better – just different. Today, I am happy from where I’ve come and like the route I am heading. There are times when I need to pause and refuel, but you have to continue.

There is hope and promise that my life is going to be a pretty exciting ride. I know that and I feel that I am coasting already.

If only one single-mom-to-be sees this today and finds hope, then, I am thankful.

Hang in there ladies. Move forward.

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A Mother’s Story: When Your Daughter Has Cancer (Part II)

(Continued from Part I)

Kayleigh’s mother, Michelle, describes the cancer treatment process that their family went through for the last two years.

Phase one – Induction

Kayleigh has had to endure 5 phases, 26 months, of treatment.  The first phase was called induction and lasted about a month.

During this phase, Kayleigh was on 3mg of a steroid twice daily which puffed her up so much she looked as if she could pop.  Seeing her as bloated as she was, looking “deformed” and knowing how much her face hurt from being stretched as much as it was,

Kayleigh with swelling

was heartbreaking for us as parents.  Kayleigh was also given 3 different chemotherapy medications during this phase, intraveneously and intrathecally (through her spine).  The goal of the induction phase was to kill all of the leukemia cells and allow the normal blood cells to return.  It was during this phase that Kayleigh went into remission.

I believe there is a misconception about that word “remission.”  Many people think the word remission means cured. In fact, I thought that’s what that word meant until it was explained to us.

Remission actually means  that the doctor was able to get the leukemia cells under control, however, further treatment is necessary in order to keep the disease from returning.

Phase two – Consolidation

The second phase of Kayleigh’s treatment was consolidation.  This phase lasted a couple of months.  She no longer had to take steroids twice daily and so she thinned out a bit.  However, she had to begin taking an oral chemotherapy medication and had lumbar punctures with intrathecal chemotherapy about every 10 days.  This is when her hair began to thin out and she decided to get her hair cut shorter into a cute pixie cut.

Kayleigh had to deal with quite a bit of nausea, mouthsores, and back pain during this phase.  Kayleigh did develop her first fever during this phase which resulted in a 3-day stay on the hem/onc floor for infused antibiotics.  The goal of consolidation was to kill any leukemia cells that may  have remained and to treat and prevent growth of leukemia cells in the central nervous system.  That is the reason why she had so many lumbar punctures with intrathecal methotrexate.

Phase three – Intensification

The third phase was delayed intensification and lasted about two months.   During this phase, they gave her some of the same chemotherapy medications – one being methotrexate which built up in her body.

One day, my mom called me in a panic while I was at work. She shared with me that the school nurse had called her because Kayleigh was having a difficult time holding her head up and using her right arm. A teacher myself, I was very fortunate to have a co-teacher working with me and was able to leave right away. By the time I got to Kayleigh she seemed better, but I took her to see her oncologist anyway. He thought she seemed fine and said to just keep a close eye on her.  She had already been scheduled to visit the clinic the next day.  So we brought Kayleigh home and for the most part, she seemed fine the rest of the evening.

The next morning was a little bit crazy around our house, probably just like most houses with two or more children to get ready for school.  I was trying to get the younger two ready for school, dressed, fed, lunches packed while Kayleigh was still sleeping.  She woke up and came out to the couch wanting something to eat.  She laid back down while we finished getting the other two ready and onto the bus.  When I returned inside, I noticed Kayleigh was trying to sit up on the couch, but couldn’t pull herself up.  I was able to sit her up against me, but she couldn’t hold her head up or raise her arms.  Her tongue then began to hang out of her mouth, she began to drool, and she was unable to speak to us.  Hearing the words, “your child has cancer” was one thing, but now this!!!

I quickly called the doctor on call because it was still before the office hours. He said we needed to get her there as quick as we could and they would be waiting for us.  We probably should have called 911 for an ambulance, but I’m sure we got there just as quickly with how fast my husband, Jason, was driving.  I sat in the back with Kayleigh, unable to respond other than with a moan or cry, holding her head up so she wouldn’t choke on her tongue or spit.  You can only imagine the things racing through my mind!

When we arrived at the clinic, the wonderful doctors and nurses were waiting and examined Kayleigh who was continuing to seizure.  They quickly got her to radiology for a CT scan, which didn’t occur quickly at all.  I was very frustrated when they were taking patients ahead of our daughter who was continuing to seizure.  The staff was simply following their protocol, waiting for insurance to approve the need of an CT scan.

I was a very upset momma wanting answers immediately, “Is our daughter going to be okay?”  The thoughts racing through my mind, “Is she having a stroke?  Does she have a brain tumor?  Will she ever be the same again?”

The radiology staff said if we went ahead without approval we would be charged around $10,000.  The nurses reassured me that they thought she would be okay, that it would be okay to wait a little longer for the test.

The hem/onc nurses are very special people.  They were able to calm Kayleigh as well as me and Jason.  Once Kayleigh finally got her CT scan, it showed seizure activity and a little scarring, but no tumors or anything worrisome like that.  Upon admittance to ICU and further testing, blood tests, the doctor was able to determine that Kayleigh had built up toxicity to the methotrexate.  They were able to give her a rescue medication that ceased the seizures.  The doctor then changed her chemotherapy medication for six months and then reintroduced the methotrexate after MRI results showed it would be okay to.

The goal of the delayed intensification phase is to prevent the leukemia from returning.  Not all children have the reaction that Kayleigh did.  Although in the moment it was horrible and very scary, it was only a minor bump in the road of Kayleigh’s journey.

It was also during this phase that Kayleigh’s hair finally all fell out.  We ended up getting it shaved prior to every last hair falling out.  Kayleigh handled her hairloss with grace.  She even lost her eyebrows and eyelashes.  Though she had a wig and many hats, Kayleigh chose to show her bald, beaultiful self most days.  I will admit, I loved rubbing her fuzzy head which was as soft as a baby chick.

Maintenance

Kayleigh then moved on to interim maintenance and maintenance, the final phases.  Kayleigh has been in maintenance for nearly 2 years now.  The goal of this final phase is to maintain the remission, to continue to prevent the leukemia from returning.

Kayleigh has done fairly well with this phase as it’s less intensive.  She orally takes a nightly chemo medication and a weekly chemo medication.  She has a CBC (complete blood count) completed monthly, infused antibiotic via her infusaport monthly, a chemo push via her port monthly, and a 5 day steroid pulse.  Kayleigh also gets a lumbar puncture with intrathecal methotrexate every third month.  She deals with the same side effects each month: severe jaw pain so bad she can’t hardly eat, talk, or smile; joint pain and stiffness causing her ankles and knees to give out, extreme hunger thanks to the steroids, many sleepless nights due to the steroids, nausea, headaches, bloating, and major mood swings.  Overall, Kayleigh manages the side effects pretty well. She did unfortunately lose her hair a second time during this phase which isn’t common.  Just another minor bump in the road of her journey.   I think it’s more difficult for us, her loved ones, to see her suffering than it is on Kayleigh.  This has been a very long journey, one that we would have never dreamed in a million years that we would be a part of, a journey that is almost over, at least for the treatment phase.

(To be continued…)

   Note: To help Kayleigh and her family, please support these fundraising events in the Dayton area. Or, please donate if you do not live locally.

CureSearch for Children’s Cancer being held Saturday, September 22 at Eastwood Metro Park from 11:00-2:00 www.curesearchwalk.org/dayton/kayleighsrusaders

Leukemia and Lymphoma Society Light the Night walk being held Thursday, October 4 at 7:00 at the Fraze Pavillion  9:08pm

 

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A Mother’s Story: When Your Daughter Has Cancer (Part I)

September is Childhood Cancer Awareness month.  Were you aware? Thirty six children everyday are diagnosed with cancer. Seven of them will not survive. That is seven too many.

I grew up with two people who now know the experience of childhood cancer all too well. I was a cheerleader with Michelle. Jason, her boyfriend, was good friends with my very first boyfriend when I was in eighth grade. Michelle and Jason were high school sweethearts and later married and had three beautiful girls. Their life–by most accounts–was pretty darn good. That is, until two years ago when their daughter, Kayleigh, was diagnosed with Acute Lymphoblastic Leukemia.

Each year, approximately 13,500 parents will hear the words “your child has cancer.”  Across all ages, ethnic groups and socio-economics, this disease remains the number one cause of death by disease in children.  Despite major advances – from an overall survival rate of 10% just 40 years ago to nearly 80% today, for many rare cancers, the survival rate is much lower.  Furthermore, the number of diagnosed cases annually has not declined in nearly 20 years.

Kayliegh continues to fight the disease everyday. This is her mother’s account of their experience.

Guest post by: Michelle Brun Crabtree

Kayleigh was diagnosed with Acute Lymphoblastic Leukemia on August 20, 2010. We had no idea that this is what was wrong with her when I took her to the doctor for what seemed to be unrelated symptoms. I took her to the doctor in early August because she had complained about severe pain in the back of her left leg which was also accompanied by a slight fever. While at the doctor’s office, I noticed excessive bruising on her shins and also asked about this. This visit didn’t result in much, a strained hamstring, unrelated virus, and kid-likely bruises. The pain, fever, and bruises all disappeared in their own time.

The severe leg pain and slight fever came back once again on August 19th. This time these symptoms were accompanied by abdomen pain and bruising on Kayleigh’s arms. The doctor decided to side with caution and send Kayleigh for labs and an x-ray. Her appointment was at 10 AM. By 3:30, we knew the x-ray was fine, which we were relieved by. At 5:00, the phone rang again…with news I thought I would never have to hear. It was the doctor’s voice this time. As she began to go over the results, I had no idea what many of the terms (hemoglobin, hemotacrit, platelets) meant but knew by her saying “very low” after each one, the results weren’t good. Then she told me “and they found blasts”. I could hear nervousness and sorrow in the doctor’s voice. I said, “Blasts, what are blasts?” The doctor proceeded to tell me that they are cancer cells and that Kayleigh likely has a form of Leukemia.

I was then asked how soon we could get her to Children’s Emergency to be admitted and that she would then be sent up to the Hematology, Oncology floor. My words, “Are you serious? I can’t believe this!”, among many others and sobs of fear, sadness, anger, and disbelief. At the time I received the call, I was the only one home with our three little girls. I had to pull myself together, make many phone calls, pull things together for an unexpected hospital stay not knowing how long it would be, and prepare our family for the beginning of a long unwanted journey.

Kayleigh was just getting out of the shower and I calmly dried her hair, then took her into her bedroom and asked her to help me get an overnight bag together. When she asked me why, I simply told her that we needed to go stay at the hospital that night for further testing because the doctors thought her blood was sick. Of course she was terrified, as we all were but trying not to show it.

And so our journey began! We arrived at the hospital, she was admitted, soon after sent upstairs, and began an unknown evening of tests. Kayleigh had a bone marrow aspiration on Saturday morning and by the afternoon, we knew which type of Leukemia she had. We were pleased to know that she has one of the more curable types with a cure rate of 90% or greater. By Sunday afternoon, she had a port implanted, lumbar puncture with chemo injection, and her first chemo treatment through her port. What a whirlwind! Everything happened so quickly, but we are truly grateful that the doctors were on top of her disease right away.

Kayleigh spent 10 days in the hospital. She had a few side effects that kept her in longer than expected. The port site chemo made her jaw hurt horribly, she couldn’t hardly eat for days and was fed intravenously. The lumbar puncture made her lower back hurt so bad that she couldn’t raise herself up straight and had difficulty walking. Within the time frame we spent at the hospital, our family was visited by all kinds of people…family, friends, doctors, nurses, a dietitian, a pharmacy rep, a social worker, a psychologist, and the list goes on. Again, it was such a whirlwind, a nightmare, a week in a fog.

Kayleigh has had to endure 5 phases, 26 months, of treatment. During the first month of treatment, she had to take a steroid for the entire month. Her face became very round, so puffed up it looked as if it could pop and her belly as well. Her hair began to thin from the spinal chemo she was given and so we got her hair cut much shorter, in a pixie style. She continued getting high dose chemo for the first 3 phases. She went into remission within a month and a half. During one of the phases, delayed intensification, she built up toxicity to the chemo. Each dose they gave her was slightly increased.

 

One day my mom called me at work to tell me the nurse had called her because Kayleigh was having a difficult time holding her head up and using her right arm. I was fortunate to have a co-teacher working with me and was able to leave right away. By the time I got to Kayleigh she seemed better but I took her to see her oncologist anyway. He thought she seemed fine and said to just keep a close eye on her. She was scheduled for chemo for the next day.

(to be continued…)

Note: To help Kayleigh and her family, please support these fundraising events in the Dayton area. Or, please donate if you do not live locally.

We have two walks coming up for team Kayleigh’s Crusaders.  The first is on Saturday, September 22 at Eastwood Metro Park beginning at 11.  It is for CureSearch for Children’s Cancer. www.curesearchwalk.org/dayton/kayleighscrusaders

The next walk that we’re doing (the karaoke and comedy events are for this one) is Light the Night on Thursday, October 4 at the Fraze beginning around 7:00pm.  Go to the website, look up the Dayton walk, and then go to join a team – Kayleigh’s Crusaderswww.lightthenight.org

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Not Your Mom’s Bag

I carry everything but the kitchen sink with me now that I am a mom.  Bottles with formula, sanitizing hand spray, stain remover – you name it – all go in my purse. After three kids, the traditional diaper bag has fallen by the wayside. It’s just too much to tow around.

Have you ever spilled something on your favorite handbag and were forced to replace the “perfect” purse? It happened to Michelle Romero, a 29-year old Utah mother of two. She turned her frustration into an international business. Michelle thought, “What if you could just replace the outside of a purse without taking everything out of your bag?” So, using the stained bag with some glue and scrap fabric, she created a rough prototype of a purse with interchangeable covers. Michelle enlisted the help of a friend and Annette Cavaness. Together they started the process of building a business that became Miche Bag. It was an “interchangeable handbag.”

Pronounced MEE-chee and given Michelle’s nickname, Miche Bag offers basic bags, handles and nearly 100 different styles of outer shells.  Pick a bag, a handle and a shell, and in a matter of seconds you can change the entire look and feel of your purse to match any outfit without ever moving the inside contents.  Different shells attach seamlessly to the base bag using magnets to hold the shell in place. The company has just added a new “slouchy” bag that not only changes the color and texture of the purse, but the entire shape as well.   

Miche Bags are sold in 34 countries around the world.  The company is focused on helping other moms generate income for their families through at-home parties, where most of the purses are sold.  Miche Bag is also sold online and in select retail locations.

Fashion can be affordable!  What’s better, is that is provides a great avenue for women that want to work from home or supplement their income.  As a single mom of three, this was my motivation, so I signed up to be a Miche representative. I figured before the holidays hit, I needed a way to earn some extra income and maybe get myself a cute little purse in the process.

The selection of styles, shells, and handles allows you to make several looks out of one – it’s a quality product at an affordable investment. Even celebrities have been spotted with the coveted bags. They would make a great gift for any woman in your life!

If you are interested in learning more about Miche Bags or becoming a representative too, join me!  Visit my website:  www.richelle.miche.com

Posted in Blogs, Family, Holidays, Moms, Products, Richelle Taylor Krzak | Tagged , , , , , , , | 1 Comment

The City Mom and the Country Mom

This week I have spoken to two different mothers living in two different cities who informed me they just bought chickens for their home.  Neither of these families are exactly living in the country, in fact, Mother 1 bought hers through mail order online and is keep her baby chicks in the garage under a heat lamp. Mother 2 also purchased chicks (except hers were from a farmer)

Mother hen with chicks02
Mother hen with chicks02 (Photo credit: Wikipedia)

and plans to bring them in to our children’s preschool for show and tell before they grow up. Who doesn’t love a fuzzy little chick?

But, clearly, these animals are not being purchased for pets, they are being purchased for function (and freshness.) Mother 1 informed me that a friend of hers also recently got chickens and it inspired her to do the same. She expects they will produce 18 eggs per week.

“It’s all the rage,” she told me.

My curiosity was piqued. I had so many questions.  Like, “How do you know if they are going to mate and lay eggs?” I still don’t know that answer.

“Will you name them?” I asked.

“Of course!” she replied

“What about when the chickens get older?” I asked. “Will they stay in the garage?”

She explained that they bought ones that tend to be more winter hearty and that they will be moved to a coop in the backyard. I am not sure if chickens can withstand our cold Ohio winters but apparently these moms seem to think so.

“What do you feed them?”  I asked.

“Grain for now but they eat table scraps too,” she answered.

I gather they are scavengers of the farm world.  She agreed and added that they don’t have terribly long life spans.

“So will you eat it when it dies” I asked, thinking it was a perfectly logical question.

“Oh no!” She said in a disapproving tone.  “We could never.”

And that, I decided is what separates the city moms from the country moms.

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Nothing Means Something

If you are like me, now that the kids are back in school, most of our conversations take place in the car during drop off or pick up runs in the minivan (maybe your car is cooler.)

Usually, they go something like this…

“How was your day?”

“Fine.”

“Did you do anyhing fun?”

“No.”

“What did you do?”

“Nothing.”

How is it that one word – NOTHING – can hold so much meaning day in and day out? Better yet, how do you get past NOTHING and into SOMETHING that you and your kids can really have a conversation about?

One of my son’s teachers sent this little note home from school and I thought it was perfect, so I will share.  It read:

When children come home at the end of the day.

The questions they’re asked as they scurry to play is,

“Tell me what you did today?”

And the answer they give makes you sigh with dismay.

“Nothing, I did nothing today!”

Perhaps nothing means that I played with blocks,

Or counted to ten, or sorted some rocks.

Maybe I painted a picture of red and blue

Or heard a story of a mouse that flew.

Maybe I tasted something new today,

Or went outside on the slide to play.

Maybe today was the very first time

That my scissors followed a very straight line.

Maybe I lead a song from beginning to end,

Or played with a special brand new friend.

When you’re in pre-school

And your heart has wings,

“Nothing” can mean so many things!

I thought this little poem was so cute. And, it doesn’t have to apply only to little kids.  Tweens and teens can be just as tight lipped when it comes to sharing the events of their day.

So whatever age child you may have, remember that the teachers that put their heart and soul into educating our children will always be willing to share the “nothing” they do all day with our kids. All you have to do is ask.

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